The Ehlers-Danlos Society recently began a study into the genome responsible for Hypermobile Ehlers-Danlos Syndrome (hEDS) called the HEDGE (Hypermobile Ehlers-Danlos Genetic Evaluation) Study. Out of the thousands of people who registered for this, including myself, only 1000 participants were selected for the honors.
Over the last few months, the Ehlers Danlos Society has travelled all over the world, collecting DNA from patients and growing their database. In their most recent Instagram post, they share a picture with a patient in Rome who has juts donated her DNA to help participate in the study.
The HEDGE Study is not only important for those of us with EDS, but also crucial as it could one day lead to a cure for the genetic illness. Only time will tell, but hopes are high for many thanks to this new groundbreaking research.
Anthea's Blog 